Things Families Effected By Autism Want You to Know

Family/ Parenting
By: MakingCents    
17-Apr-2012
  • 01

    Our Lives Are Very Busy

    I'm sure your lives are busy too, with sports and scouts and various other extra-curricular activities. If only we had time for that. Many kids with autism by the time they are 3 years old receive upwards of 40 hours of intervention a week. Intervention can range from school, at home programming such as floor-time or ABA, speech therapy, music therapy, occupational therapy, physical therapy, vision therapy and the list goes on. These young children often 'work' more in a week than their parents do!

  • 02

    Schedules Matter

    For many many children on the autism spectrum, their schedule and their routine matters. They can't just skip therapy because the weathers nice and it would be more fun to go to the pool. Please try to be patient with us, we do want to have playdates, we just can't do them at the last second! Even if the child's schedule isn't full they need their routines, and a sudden interruption in the routine can set off a spiral of behaviors that may last the rest of the day.

  • 03

    What Our Kids Will and Are Allowed to Eat Can Be Very Limited.

    Many kids with autism have to have a limited diet to some degree. In tolerances to certain foods can cause their diets to be extremely limited. If you are having a birthday party or a get together and we arrive with our own 'gluten-free' cake please don't be offended. We just want our kids to be able to participate with the foods the will or are allowed to eat.

  • 04

    Sometimes We Have to Celebrate the Small Things

    Those things that parents of 'typical' kids take for granted are celebrated in our community every day. Pointing at something they want or even better something they want to show us (joint attention!) waving, clapping, pedaling a bike. Learning to take their clothes off or put them on. Brushing their own teeth, speaking their first word-often times years after they should have or simply even realizing what their name is and learning to respond when it is called. Those are things that come so hard to these kids, and things that autism parents celebrate daily. Appreciate your kids for even the small things because we certainly do.

  • 05

    Autism Is NOT Who Our Child Is.

    Autism is something he has, it's not who he is. It's why many of us hate the word 'autistic.' Autism is not his personality or a disorder that needs to be overcome. I would guess if you could eliminate the autism for the lives of these children they would still have contagious laughs, they would still enjoy snuggle time with their mom and going swimming with their dad. They would still like to watch tv and play outside. Yes Autism might cause them to do things differently but they are so much more than that.







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